The Shit Whisperer

We’ve been busy at Bebe’s for a while now. The current issue at home is poop. I once thought poop was hilarious, because deep down I am a 12-year-old boy when it comes to stinky humor. However I have currently become overrun by it at home and it’s causing me to really lose my mind when all I would really like to lose is my sense of smell.

The boy has been inflicted with chronic constipation since birth. We have tried everything to help him with it, and some days are good. Some are bad. This has developed into Encopresis, which is a behavioral disorder. He holds in his bowel movements as a matter of control, and to avoid pain while going. And this causes more pain when his body eventually makes himself go. And go he does. He might only go every few weeks but when he does, he breaks my toilet. I am not even kidding. We have done diet changes, bribery, rewards, kisses, seriousness, jokes, yelling, and against my better judgement I looked up the patron saint of constipation. He exists. The Catholics think of everything! In between shitting out meteoric sized balls into my now delicate and frightened toilet, his body compensates for waste removal by expelling brown liquid, day in, and day out.

It’s messy. It’s stinky. We have underwear drying out on every railing in our house. I smell like shit every night. I wipe it from remote controls, bath tubs, toys, walls, floors, socks, pants, carpets, beds and shirts. On some days, I get beaten up and scratched trying to get him for a sit on the toilet. I try to calm him down and let him know that I know he is angry and scared, and that’s okay. But hitting your mom or anyone out of anger and fear is never okay. Honestly though, if I didn’t have a fear of raising an abusive man, I would let him hit me all he wanted if it made him feel better. I will just lie and say I am in a roller derby league to explain the scratches. For a family experiencing constipation, we are in the throes of shit.

All of the time.

We do attend psychiatric counseling with the boy, to learn new parenting techniques. To try to understand where his mind is when this happens. To be less frustrated, angry and confused. It’s helped us as a family a great deal. I wish it could cure him but it hasn’t. My husband has learned a bit more about himself and his role as a parent, and even though our Saturday is really busy and sometimes sad, we are chipping away at years worth of issues that needed to be tackled. So hey, that’s good, right? All it took was my kid being in pain, afraid of what should be a hilarious rite of passage for any 4-year-old, and my sudden need to gag whenever I see anything brown, up to and including chocolate. Is nothing sacred, man?

I have questioned why I have been going through this and felt great sympathy for myself. Aggravation, frustration, disgust, and pure anger are also feelings that pop up now and then. It stays with me quite a lot, until I remember a couple of things. My kid is really fucking cool. No, I don’t really need to add the curse word to accentuate how much I love him and how cool he is. But some people deserve the added color. And he does. Aside from his issues, like his possible Aspergers, his SPD, his delays, and his iron strong will, he is healthy to the core. He eats, plays, grows, smiles, laughs, and has no other problems in life, other than future embarrassment of his parents, and with good reason. He is profoundly lucky and in turn, I am profoundly lucky. So many parents with so many more issues, their babies being very sick their whole lives. Or worse, dying. Those parents, they just do what they do. It’s not easy for them. I know that. I really do.

More importantly though, when my son is in pain, or has neurological issues, I just try really hard to know that this is HIS reality more so than mine. I am his mother and it’s MY job to help him through this and be strong, be patient, and be his biggest advocate when doctors blow you off and your best laid plans don’t seem to work. I cannot imagine what it’s like to BE HIM. I would love to learn what makes him tick, and I hope to really tap into that. So I keep working for it. If I have to be knee-deep in shit to learn to stay the course and keep fighting for my kid, then so be it. Jesus H, if you read my posts regularly you will know I just shit my own pants not too long ago. It’s my destiny, people! 

The Shit Whisperer. That’s my roller derby name.

Bebe

 

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2 Comments (+add yours?)

  1. Alison V
    Jan 15, 2013 @ 14:04:08

    I just laughed and cried reading your post. I am a fellow parent who stumbled upon your site while googling “Sensory Disorders and Constipation”. THANK YOU for integrating humor, respect, and humility into such a difficult issue. My son is almost 5, and our whole world tends to revolve around his bowel movements (or lack thereof). It is so trying, and so many people just do not understand. Asperger’s, Sensory Processing Disorder and Hypotonia are all terms that have been thrown our way, though no official diagnosis has been given. Can you tell me about Encopresis, and how you came to figure this out? Our doctors continue to tell us constipation in kids is common, but I feel there is more going on with my son, and I need to do something to help him, not wait for it to go away. He has struggled with pooping for almost 2 years – I don’t think he is “growing out of it!” Thank you for any insight. You are a great parent!

    Reply

    • thecrabbucket
      May 08, 2013 @ 13:50:58

      Alison,
      I have neglected this blog in the worst way, for nearly a year. I am so sorry. I just emailed you privately and I hope you are fairing well by now. BUt if you aren’t, email me back and we will have a long exchange about all you can do and how hard this is. Again I am so sorry!!!

      Reply

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